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Twenty percent of hospitals will close by the end of the decade, predicted bioethicist Ezekiel “Zeke” Emanuel MD, PhD, during a keynote address at the Boston Children’s Hospital Global Pediatric Innovation Summit + Awards.

How can hospitals make the cut and stay alive? The only way is to deliver high-quality, low-cost care that elicits patient allegiance, said Emanuel, a former health advisor to President Barack Obama, the chair of the Department of Medical Ethics & Health Policy at the University of Pennsylvania, and the author of Reinventing American Health Care. Full story »

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Some innovators, Naomi Fried, PhD, chief innovation officer at Boston Children’s Hospital, says, can end up alone on an island and make something out of just sand and water. But a lot of other innovators could benefit from getting help. In her role as lead of Boston Children’s Innovation Acceleration Program, Fried and her team help established and potential innovators alike connect with that help: navigating vendor/manufacturer contracts, accessing specialists like designers and coders, and raising funding. “You can’t have an innovative organization unless you have a plan and a structure for that.” Full story »

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Rare disease panelWhen a rare disease affects you or your family, it doesn’t seem rare. Add them all up, and rare diseases aren’t all that uncommon. What’s rare is for patients to receive effective treatments.

“There are 7,000 rare diseases, and under 400 approved drugs,” says Peter Saltonstall, president and CEO of the National Organization for Rare Disorders (NORD), “so there’s a huge opportunity there to try to develop more drugs.”

Saltonstall spoke today with five other panelists at Boston Children’s Hospital’s Global Pediatric Innovation Summit + Awards in a session titled, “Rare diseases: Lessons from the path less chosen.” David Meeker, MD, president and CEO of Genzyme, moderated. Full story »

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The second annual Boston Children’s Hospital Global Pediatric Innovation Summit + Awards kicked off in high gear on Thursday, October 30. The many highlights from the day included a keynote address from Fast Company cofounder Bill Taylor, presentations on IBM Watson and a partnership between NASCAR pit crews and pediatric surgeons (really), and spirited panel discussions on mobile and digital health, rare diseases, and more. Full story »

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At first, Peter Waters, MD, was a bit puzzled when he was asked to present at the 2014 Global Pediatric Innovation + Awards. Unlike some of his colleagues at Boston Children’s Hospital, Waters, the hospital’s orthopedic surgeon-in-chief, hadn’t developed an orthopedic widget or led groundbreaking scientific research. But his innovation could ultimately be even more important.

Waters has leveraged an unlikely partnership with the NASCAR racing team Hendrick Motorsports to inject new levels of safety and collaboration into pediatric orthopedic surgery departments across the United States. Full story »

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The mobile and digital health market is evolving with great intensity and speed. The surge in wearable technology, health-related apps and the explosion of digital health communication continue to flood the marketplace.

Joseph Kvedar, MD, of Partners Healthcare’s Center for Connected Health—who took part in a think tank of panelists at Boston Children’s Hospital’s Global Pediatric Innovation Summit + Awards 2014—says this surge is the beginning of the “mHealth” revolution:

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BCH_InnoSummit14_RhodinMike-3The only machine to ever win a TV game show is now transforming the world of healthcare.

After winning Jeopardy in 2011, IBM’s Watson has moved on to bigger and better things. Mike Rhodin, Senior Vice President of the IBM Watson Group, told the audience at Boston Children’s Hospital’s Global Pediatric Innovation Summit + Awards 2014 how the cognitive computing system is being used to synthesize medical data and assist clinicians caring for complex patients.

“We live in an age of information overload,” Rhodin explained. “The challenge is to now turn that information into knowledge.” Full story »

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Gene Discovery Core rare diseaseVector took a moment this morning at the Boston Children’s Hospital Global Pediatric Innovation Summit + Awards to catch up with the Gene Discovery Core at the Manton Center for Orphan Disease Research. Its exhibition table doesn’t have fancy mannequins or flashy screens, but this team is rocking genetics and genomics, one patient at a time.

The usual methods for finding disease-causing genes don’t work for many patients who walk in the doors of Boston Children’s, or who mail in samples from all over the world. They may be one of just a handful of patients in the world with their condition—which may not even have a name yet. Full story »

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“R&D is not always research and development. Sometimes it’s rip off and duplicate,” Bill Taylor, cofounder and founding editor of Fast Company magazine, said during his keynote address at the Boston Children’s Hospital Global Pediatric Innovation Summit + Awards 2014.

In his address, titled “Tough Problems, New Remedies: A Practically Radical Prescription for Health Care,” Taylor encouraged innovators to look broadly across other fields and determine the health care version of the most successful players in those fields.
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Hematopoietic hierarchy aging blood cell hematopoietic stem cell blood disorder Derrick Rossi

Blood-forming hematopoietic stem cells (top) give rise to all blood and immune cell types. In children with SCID, the steps leading to immune cells are broken.

In the world of fatal congenital immunodeficiency diseases, good news is always welcome, because most patients die before their first birthday if not treated. Babies with severe combined immunodeficiency disease, aka SCID or the “bubble boy disease,” now have more hope for survival thanks to two pieces of good news.

Transplants are looking up

First came a July paper in the New England Journal of Medicine (NEJM) by the Primary Immune Deficiency Treatment Consortium. This North American collaborative analyzed a decade’s worth of outcomes of hematopoietic stem cell transplant (HSCT), currently the only standard treatment option for SCID that has a chance of providing a permanent cure. Full story »

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